1. < Neuropathy

Neuropathy Relief Centers: Is the price worth it?

Posted by gm123 @gm123, May 31, 2023

I've been suffering from peripheral neuropathy for the past 5 years. Started in the toes of my right foot and has been steadily rising up to my thigh. The numbness, tingling and burning sensations have been driving me crazy. And now my balance is getting so bad I'm careful not to fall over. Even driving is becoming difficult as I can barely feel the foot pedals. All doctors have told me that there is no cure and that it will just get worse with age. They prescribed Gabapentin and my neurologist suggested spinal injections which I do not wish to pursue. 1'll soon be 75.
Now I've recently come across a Neuropathy and Chronic Pain Center in Connecticut which claims an 80% success rate with their patients. They use SANEXAS and other electrical stimulation devices. However they do not accept insurance and patients have to pay in advance out of pocket. The price tag is hefty: over $6,000 for 16 sessions. Does this sound outrageous or reasonable? Any opinions would be welcomed!

Interested in more discussions like this? Go to the Neuropathy Support Group.

gm123 | @gm123 | Jun 1, 2023
In reply to @drtypws "I'm in California. Sanexas is covered by Medicare (24 treatments). So double-check with Medicare to see..." + (show)
@drtypws

I'm in California. Sanexas is covered by Medicare (24 treatments). So double-check with Medicare to see if it's covered. The place where I went to did the injections with the treatment. Unfortunately, I had a reaction to the injections. They wouldn't let me continue without them. Sanexas was helping me with the neuropathy in my feet.
I'd check to see if there are other neuro clinics in your area. Go to the Sanexas website. I believe you can find a clinic there.

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I believe Medicare covers SANEXAS treatments only if neuropathy is the result of diabetes, which is not my case. There are no specific injections with this treatment here.

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Mentor
John, Volunteer Mentor | @johnbishop | Jun 1, 2023

Hi @gm123 and others, I thought I would share a couple of links to these related discussions which might also be helpful.

--- Does anybody have experience with SANEXAS for neuropathy?: https://connect.mayoclinic.org/discussion/sanexas/
--- Neuropathy Clinics: https://connect.mayoclinic.org/discussion/neuropathy-17/

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drtypws | @drtypws | Jun 1, 2023
In reply to @drtypws "I'm in California. Sanexas is covered by Medicare (24 treatments). So double-check with Medicare to see..." + (show)
@drtypws

I'm in California. Sanexas is covered by Medicare (24 treatments). So double-check with Medicare to see if it's covered. The place where I went to did the injections with the treatment. Unfortunately, I had a reaction to the injections. They wouldn't let me continue without them. Sanexas was helping me with the neuropathy in my feet.
I'd check to see if there are other neuro clinics in your area. Go to the Sanexas website. I believe you can find a clinic there.

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I don't have diabetes. Medicare covered the treatments.
Since stopping the treatments I have found that some clinics don't use the injections.

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Judyinjeans. | @judyingenes | Jun 2, 2023

Drtypaws are you in California? Tell us more about the treatment please? Was it beneficial? Long lasting?

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1 reply
su8 | @su8 | Jun 2, 2023
In reply to @drtypws "I'm in California. Sanexas is covered by Medicare (24 treatments). So double-check with Medicare to see..." + (show)
@drtypws

I'm in California. Sanexas is covered by Medicare (24 treatments). So double-check with Medicare to see if it's covered. The place where I went to did the injections with the treatment. Unfortunately, I had a reaction to the injections. They wouldn't let me continue without them. Sanexas was helping me with the neuropathy in my feet.
I'd check to see if there are other neuro clinics in your area. Go to the Sanexas website. I believe you can find a clinic there.

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Medicare does cover these treatments. I’m living proof

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Illa C. Chambers | @illac | Jun 2, 2023
In reply to @judyingenes "Your story is a lot like mine… and please stop driving, I know you can’t feel..." + (show)
@judyingenes

Your story is a lot like mine… and please stop driving, I know you can’t feel the car pedals, so please, protect yourself!
I am 82 and mine started in both feet about the same age as yours did. I have always thought that mine was an extension of restless leg syndrome which I have had since I was in my 20s. Mine has progressed up both of my legs up past, just passed, my knees. I have seen advertisements for the same type of procedure in the San Francisco Bay area where I live. I would quite frankly pay the money and try it out if I could afford it myself. This is not a fun thing to deal with every day.

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Thank you so much for sharing, and yes so would I as I have already. I am 56 and Progressive Peripheral Neuropathy attacked me at age 54 unfortunately and it began at it worst stages for me from the waist down and it was servers with no warning. There are no clinics near that are able to be of any assistance I could continue to say unfortunately but I won’t. I don’t really have a good balance , it’s hard for me to walk , stand for long periods of time , and my stability is not there at all , but I am still able to push my way through and for that I am beyond grateful. So as for me I won’t complain I continue trusting God each and every day, and that along with my beautiful Daughter has been what has helped me through this ailment. I would encourage any and every one that can afford it or have a clinic nearby to look them up if that’s what you decide, but what has helped me press forward and keep my sanity is staying in constant prayer and the love of my Daughter. I pray that something was said that blessed your heart. Have an amazing weekend.

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Illa C. Chambers | @illac | Jun 2, 2023
In reply to @lagrange5 "Claims of high success rates coupled with high uninsured costs would cause me to do a..." + (show)
@lagrange5

Claims of high success rates coupled with high uninsured costs would cause me to do a deep internet dive into the organization. Before jumping in, be sure to read as much as possible about it. How long have they been around,,, who are the people in charge... who are the medical people... is only 16 sessions,,, is it only $6000,,, are there any actual patients' comments... have they had any legal or regulatory proceedings... etc...? It may be great breakthrough. But if it sounds like it's too good to be true, it probably is.

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I totally agree, and these are reasons why I need this group because there are always helpful perspectives from others that open my eyes and for that I truly that you so much. Have an amazing weekend and thank you again for sharing.

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victoriairis | @victoriairis | Jun 2, 2023

Are there any clinics in Lehigfh Valley Pennsylvania?

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1 reply
kingfish1952 | @kingfish1952 | Jun 2, 2023

My experience with Sanexus for my feet after 30 treatments was that it was a complete waste of time and money.
I had had my neuropath for about 10 years. Perhaps it works better for someone whose neuropathy symptoms are more recent. I also tried Calmare treatments. Same outcome. I would consult studies from reliable sources to see what they reveal in terms of positive outcomes.

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1 reply
drtypws | @drtypws | Jun 3, 2023
In reply to @judyingenes "Drtypaws are you in California? Tell us more about the treatment please? Was it beneficial? Long..." + (show)
@judyingenes

Drtypaws are you in California? Tell us more about the treatment please? Was it beneficial? Long lasting?

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Yes, I'm in Northern California. It was helping me. My PN was mainly bad in my right foot. The treatment calmed it down so I didn't have any sharp pain esp. in my big toe. I'm sure it would have helped even more if I was able to continue the treatments without the injections.
My PN has progressed now but I'm on an IV infusion of Orencia for my arthritis. I wonder if that has anything to do with it.

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