← Return to Essential Thrombocythemia: Looking for information and support

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@crhilston

Thank you for reaching out. My symptoms are varied. In no particular order, they are: extreme weakness/balance in legs; heavy bruising; red rash-like spots on skin (mostly arms and legs); weight loss (30 lbs so far); loss of appetite; very low platelets (under 10); CBC numbers are all far from normal. My next appointment is today for another CBC and discussion of results and then on June 8 with my doctor to decide on a treatment plan. I will report what this meeting produces.

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Replies to "Thank you for reaching out. My symptoms are varied. In no particular order, they are: extreme..."

Your doctor may suggest a blood and platelet transfusion very soon. It would help you with the fatigue and also avoid any potentially dangerous bleeding from your low platelet level.
Wonky blood numbers are pretty typical and AML can progress rapidly with extreme fatigue and weakness. You’re already feeling that side effect so make sure to have support with a walker or have someone give you a ride with a wheel chair. Save your energy. 🙂.