← Return to Trouble eating with HCM

Discussion

Trouble eating with HCM

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jul 24 1:40am | Replies (39)

Comment receiving replies
@karukgirl

You must be very pleased with the results of your year on Camzyos @captainterry!
It is a "thing" for sure it seems with many of us HOCM/HCM people, about the bad overall feelings after eating. I'm happy to read that you are doing so well, and I'm jealous you've lost 10 pounds! Since you are a year into this, how often do you go for rechecks with your cardiologist?

Jump to this post


Replies to "You must be very pleased with the results of your year on Camzyos @captainterry! It is..."

We have followed the REM protocol through this point on Camzyos. Currently seeing DR. from 4 to 8 months between visits. Echocardiograms every 3 months. I also have an ICD installed before Camzyos, so I am constantly monitored. The ICD has never made a pacemaker adjustment or given me a shock. Thankfully.