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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Jun 17 9:11am | Replies (504)
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@loribmt

Hi @crhilston I just wanted to pop in this morning to see how you’re feeling. With newly diagnosed AML, in the early stages, you’ll most likely be feeling some fatigue and maybe shortness of breath. Do you have any other symptoms?

I’d be very interested in learning what your doctor will recommend for potential treatments for you. I know there are new abrogating meds on the market. Would you mind sharing after your appointment?

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Replies to "Hi @crhilston I just wanted to pop in this morning to see how you’re feeling. With..."
crhilston | @crhilston | Jun 1, 2023

Thank you for reaching out. My symptoms are varied. In no particular order, they are: extreme weakness/balance in legs; heavy bruising; red rash-like spots on skin (mostly arms and legs); weight loss (30 lbs so far); loss of appetite; very low platelets (under 10); CBC numbers are all far from normal. My next appointment is today for another CBC and discussion of results and then on June 8 with my doctor to decide on a treatment plan. I will report what this meeting produces.

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