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73 yr old male with HOCM. Started Camzyos one year ago. Long documented history of HOCM frequent syncopy leading to fainting. Onset of syncope with some labored breathing was most often preceded by a meal then getting up to walk, etc.
A very direct relationship that did not get much traction from very good cardiologists other than blood was being directed to stomach and gut for digestion. Before Camzyos 64 oz of water daily with increased moderate salt intake helped. Usually had a light breakfast and skipped lunch to help also. After Camzyos, no syncope! And I lost 10 pounds which I am keeping off.
Replies to "73 yr old male with HOCM. Started Camzyos one year ago. Long documented history of HOCM..."
@captainterry So you lost 10 lbs from being sick or after you started Camzyos? I had been used to doing hour and half pilates in a sauna before all this started, i had to cancel my membership and havent been able to do even housework for over a year, probably longer just didnt realize until it got worse. I am praying Camzyos works for me but I am still seeing Clevelend in March for a 2nd opinion on everything. I am so glad you are doing well and able to lead a somewhat normal life again. Keep up the good work and the inspiration to all of us who arent there yet. 🙂
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You must be very pleased with the results of your year on Camzyos @captainterry!
It is a "thing" for sure it seems with many of us HOCM/HCM people, about the bad overall feelings after eating. I'm happy to read that you are doing so well, and I'm jealous you've lost 10 pounds! Since you are a year into this, how often do you go for rechecks with your cardiologist?