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Trouble eating with HCM

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jul 24 1:40am | Replies (39)

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@captainterry

73 yr old male with HOCM. Started Camzyos one year ago. Long documented history of HOCM frequent syncopy leading to fainting. Onset of syncope with some labored breathing was most often preceded by a meal then getting up to walk, etc.
A very direct relationship that did not get much traction from very good cardiologists other than blood was being directed to stomach and gut for digestion. Before Camzyos 64 oz of water daily with increased moderate salt intake helped. Usually had a light breakfast and skipped lunch to help also. After Camzyos, no syncope! And I lost 10 pounds which I am keeping off.

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Replies to "73 yr old male with HOCM. Started Camzyos one year ago. Long documented history of HOCM..."

You must be very pleased with the results of your year on Camzyos @captainterry!
It is a "thing" for sure it seems with many of us HOCM/HCM people, about the bad overall feelings after eating. I'm happy to read that you are doing so well, and I'm jealous you've lost 10 pounds! Since you are a year into this, how often do you go for rechecks with your cardiologist?