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MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio
Blood Cancers & Disorders | Last Active: Jan 1 2:01am | Replies (172)Comment receiving replies
I'm new on here but I REALLY NEED to ask questions. My bloodwork just came back and my light chains are sitting at 44! I'm an RN for a health company so I can read bloodwork. My liver and kidney functions are perfect. All of my other bloodwork is also perfect. I have no pain and I've never had an infection in my life. Never get sick, never have I ever taken an antibiotic or had Covid. I feel perfectly fine. I only discovered this because I was a blood donor and they told me I couldn't donate anymore. I am very confused and scared because nothing adds up. Is ANYONE out there like me????? My cbc is also normal. My hematologist told me not to worry....ya, right!!!
Replies to "I'm new on here but I REALLY NEED to ask questions. My bloodwork just came back..."
Hi Robin,
Yes I am exactly like you! I have no symptoms. Slight back ache, which goes with exercise. My liver and kidney function are also perfect. The reason I got tested is because we found out just before Mum died this February at 83, she had multiple MM.
I am two weeks in. Very scared, struggling to sleep and having full on panic attacks!!! I am waiting to see the haematologist- 3 weeks to go! They have suggested it could be smouldering myeloma. I’m being told from the few friends and family I have told to keep positive as it might only be MGUS. I feel like screaming is that all!! I’ve just watched my mother die and now realise why she had all these complications!!! But I suppose though 83 isn’t a bad age!
it is really good that Your haematologist says not to worry. I know that’s not much, but it is a little bit of hope. Keep doing what you’re doing if you’re healthy in every other way.
Sending a huge hug X
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Same situation here. ICU RN, Incidental finding on my labs last year, 24 hour urine done, bone marrow bx done, diagnosed with MGUS. Labs being followed every 6 months. Was going to once a year but serum and ratio increased last month so repeat in 3 months. Rest of labs look fine and feel okay. Hard to avoid going “down rabbit hole” as they say. Trying to keep busy. Understand what you are going through. Yoga., diet, mediation, walking, and meds if warranted.
Thinking of you.