← Return to Polyarteritis anyone?
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Autoimmune Diseases | Last Active: Jun 20 9:47pm | Replies (27)
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Replies to "Thank you for all your info! A dermatologist is where I started. I’ve been having these..."
If the biopsy came back “polyarteritis,” one of your docs (rheumy, PCP/internist, derm) should be confirming no major organ involvement (physical, blood work, maybe imaging.) My rheumy ruled out major organ involvement which led to the “cutaneous” prefix for polyarteritis nodosa.
FWIW Depending on how your rheumy feels about patients who come in with Dr Internet articles, you might share this open-source diagnosis algorithm for cutaneous vasculitis https://onlinelibrary.wiley.com/doi/epdf/10.1111/j.1346-8138.2009.00761.x
Also, there’s literature suggesting a IgM aPS/PT antibody correlates with cPAN activity. See refs in my thread https://connect.mayoclinic.org/discussion/antibody-testing-laboratory
Lastly, look up @SusanEllen66. She has shared her cPAN journey on Mayo Clinic Connect