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Concerned about the side effects of anastrozole

Breast Cancer | Last Active: Nov 21 7:48am | Replies (1935)

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@jeannie53

@kwanless - I also had terrible leg pain and at times could not climb stairs unless I pulled myself up by the bannister. In addition to fatigue and getting depressed because I felt awful. I stopped my pills after 6 months and saw my oncologist yesterday, I have been off of the pills for a week and started to notice the difference after 5 days. My doctor could not believe that I have been suffering and told me I should have let her know and stopped the pills when the pain kicked in. She has instructed me to take a break for 1 month to get it all out of my system and wait until I feel like my old self. I was on anastrozole and she is going to change me to letrozole. She said if that does not work we will just try different drugs until one works and if none agree with me we will figure my next step which may be no drugs. My point is please do not suffer I had no quality of life and was starting to feel very depressed. Quality of life is very important I get having some off days but every day was off and that's not living it's existing. Please talk to your oncologist and if you get no results consider getting a new oncologist that listens to you. Sending good thoughts your way!

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Replies to "@kwanless - I also had terrible leg pain and at times could not climb stairs unless..."

jeannie53 - Letrozole is stronger than anastrozole and I took it for 7 weeks and then stopped. All the leg pain you mentioned was exactly why I went off. And the pain kept me up every night. I give you credit for staying on it 6 months. I will try Aromasin but I really want to go on Tamoxifen (even tho its not one of the newer fancy drugs), because it does not have the bone pain side effects.

I started out on Tamoxifen. I was on it for 2 years. It damaged my Liver. So my Dr. put me on
Letrazole. The pain in my joints was terrible. I am now on Anastrozole. The insomnia and fatigue and constipation has been bad. Not sleeping has been the hardest for me. I am taking a break from it for a couple of months. I have been on it for over a year.