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@kristen67

I was diagnosed with APS a year ago after a heart valve replacement and am on Xarelto. I see a hematologist, but I'm wondering if I should see a rheumatologist? I don't feel like I'm being totally listened to when I describe symptoms I'm having: eye problems, brain fog, joint pain and some days, exhaustion. I just want to be heard by the doctors I see, suggestions?

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Replies to "I was diagnosed with APS a year ago after a heart valve replacement and am on..."

Hello, I see a Rheumatologist Nurse Practioner for my Lupus and APS. I was diagnosed by a Rheumatologist, MD, at Mayo Clinic, Rochester.
On Coumadin. I have been having difficulty staying within my goal range of 2-3 with my finger stick results. I am either way low, that requires shots to raise my blood Coumadin level, or, way high, eg. 1.6 to a 4.4, 1.6, 4.0, and 3.6 respectively.
Has anyone else have had similar experiences lately? My next INR is this Tuesday , June 6th. I just hope I am not lower than 2.0. If I am, I have to take the shots. The needles are long and thick. And, are inserted into my abdomen. I require approximately 3-5 shots per week.(One daily) .Has anyone else been having trouble keeping within their goal range? T.Y. in advance. Pat