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Replies to "I was diagnosed 3 years ago with PV and positive for Jak 2. I take 2..."
Blood Cancers & Disorders | Last Active: Jul 14, 2023 | Replies (92)
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I was diagnosed 3 years ago with PV and positive for Jak 2. I take 2 baby aspirin a day and a phlebotomy about every 3 months. The fatigue has been coming more often and the itching is a real problem at times. Just wondering if anyone also has shortness of breath? I have no other health problems and take no other medication. I’m very active but find this sometimes getting in my way.
Replies to "I was diagnosed 3 years ago with PV and positive for Jak 2. I take 2..."
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Hi, I was diagnosed last week and am awaiting my hematologist/oncologist appt. But, one of my biggest everyday symptoms besides the fatigue is shortness of breath. I do use an inhaler now and my doctor thinks I may have developed asthma as well, but I wonder if it is just a rough side effect of my PV now that I have the diagnosis. I get very frustrated with it as well. Talking and walking and even rolling over in bed can make me out of breath. Being 25 and otherwise healthy, it is a very odd thing to be so out of breath.