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Unbearable Neuropathy

Neuropathy | Last Active: Sep 25, 2023 | Replies (67)

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@suzed

Ray, you're so right. I used to ride my bike for miles also, and miss that. The 'feel-good neurotransmitters' of endorphins kept me going through thick and thin. That's an excellent idea collecting pertinent information about your condition, and describing it in detail to your doctor.
I find, though, some specialists seem to be in a rush misdiagnosing (in my case) and I end up back to square one. Haven't found one I can relate to in terms of getting it right. They decidedly 'out-talk' me regarding my condition, and who knows better than ourselves when it comes to pain?
Have had endless professionals, and it's becoming not only draining but very stressful. I've never had a doctor actually examine my bad foot, and compare it to the other for structural foot deformity.
Now I am through with pain specialists, Pregabalin, temporary short cuts, and shall see an orthopedic surgeon and go from there. I used to have a great sense of humor, but it's hammered to hell at this point. You still have it though which is a marvelous attribute.

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Replies to "Ray, you're so right. I used to ride my bike for miles also, and miss that...."

I try very hard to be discriminating with the information I add and then carefully read in my PN 3-ring binder. It amuses and discourages me to see how much "bad" information is out there, primarily online – by "bad," I mean everything from wishful thinking disguised as sound medical advice to sites trying to see their "exclusively prepared" (and criminally overpriced) vitamin and mineral supplements.

An example? Every so often, I have encountered a mention on one of the trusted sites about PN and swelling. What I've read has never gone into as much detail as I might like, but it has me wondering: for years, my doctors have commented on my swollen feet, assuming edema or something else equally treatable. Nothing they've suggested or I've followed up on has reduced the swelling. Since this swelling was first noticed about the same time that my balance difficulties interfered with the fun of being alive, is the swelling involved with my PN by making good blood flow to the nerves of my feet more problematic? Right now, that's only a question in my mind, but it's one I plan to ask my doctors.

And someone here, on reading this, may have had some experience with PN and swelling, whether swelling was found to be related or not.

Another question rolling around on my brainpan these days is could my achy knees be the result of my PN or the result of a lifetime of running and all the high-impact abuse my knees have sustained over all those years; in other words, is the achiness merely arthritis (not that there's anything "mere" about arthritis!). If it's part & parcel of my PN, I may have to grin and bear it. But if it's arthritis … well then, I'll continue to exercise "through" the achiness, knowing that exercise (at least in my experience) is the best way to reduce the woes of arthritis. So much to puzzle out!

I see it's approaching 9 am here in Colorado. 9 am is my self-agreed-upon start to my work day. I'd better hustle and post this before the self-installed factory whistle blows. LOL

Ray