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Inactivity with pulmonary fibrosis

Lung Health | Last Active: Jun 11, 2023 | Replies (20)

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@ch47

Wonderful that you have a great husband and sounds like the two of you have been through a lot together…aside from not breathing well, is your knee healing how you had hoped? Can’t do much without knees…
Are you taking antifibrotics for your IPF? 10 years ago, I’m as I understand, there was nothing available. Ofev is one of two that are available today, and if you qualify, you can get a grant or possibly free medicine from the manufacturer. Won’t cure, but can prevent or slow progression. Look up Open Doors patient support, maybe they can help. Can seem like a rabbit hole doing the research, but might be a life saver for you.
Hope just IPF, not heart issues.
Will be thinking of you…

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Replies to "Wonderful that you have a great husband and sounds like the two of you have been..."

My husband was on OFEV last year. We were so happy after the ins approved and got open doors assistance. Unfortunately it affected his liver and caused low platelets. He passed from the complications. If you do use any of these drugs order liver function test for every month. Don’t wait for the 3-4 months interval