National Jewish Health NTM Patient Conf Recording available!

I am currently trying to obtain an appt at NJH but, the nurse I am working with does not think my driving there is a good idea due to the altitude. I am open for suggestions in where I can go. Kaiser my insurance provided a referral. I live in Chino, California on oxygen 4 litters or higher. I am being considered for a lung transplant have MAC, Hypersensitivity Pneumomitis, Bronchiectisis, IPL. Lung Transplant doctor more concerned with my Hypersensitivity Pneumomitis. Any suggestions

Thank you very much for posting the conference link. I watched all the presentations over the past few days and found a wealth of great information. Does anyone know how to access the slides shown in presentations? There are some I would like to review.
I appreciate this forum and have learned a lot!

Hi there!
I’m so happy you enjoyed the talks. Please feel free to share them. So much effort went into the conference. We want everyone to watch it!

I can send the slide deck to Colleen our moderator. Hopefully she can figure out how to attach it.

Best,
Linda Esposito

Actually, I don’t think there’s an issue. It’s not a PDF file or slide deck but a URL. Please see below.
https://www.nationaljewish.org/ntmslidesforpatients-1

Thank you very much for your help - this is exactly what I wanted!

My pleasure!

Do you have someone who could go with you and do the driving?

Having picked up NTM in Hawaii and moving to Seattle area for treatment, I find the research fascinating. There were 3 volcanic eruptions in my time over there. Seems the island chain is a preferred habitat. No wonder! Thank you for posting these links.

Yes, that's bit then problem its the altitude. Its much to high...

Has anyone been too the NJH in Oregon?

Yes. And Dr. Honda, the speaker, is from Hawaii. She does a lot of research there.