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Transplant Eligibility Process
Transplants | Last Active: May 31, 2023 | Replies (6)Comment receiving replies
I don't know what hospital you're working with but I would talk to Johns Hopkins. They have no waiting period rule. I say this because you don't want to end up in my shoes. I'm living a nightmare everyday.
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Dear @carolcj I send my deep condolences to you. It is important that you’ve share this and I agree that the blanket rules relating to addiction are problematic to say the least. Addiction is a disease and sometimes liver disease is the consequence of addiction. While my liver disease was not addiction related for several months my nearby liver team was skeptical and this has to do with circumstances I won’t bore you with. I was so afraid I’d die before they decided to believe me but I still feel that their skepticism and unwillingness to evaluate me right away was very dangerous for me. I did have a lifesaving transplant but my MELD was scary high at 32. I have made a commitment to myself that I would advocate for more fairness and realness about addiction and transplants. I will do so with your son in my heart too. This is important and I send to you all the light and peace you deserve. Kate