Essential Thrombocythemia (ET): foods, diet, nutrition?

Canola oil is a GMO and some studies have found adverse side effects of use. I checked Healthline.com and found some good info. Just asked is canola oil healthy. Personaly have never used it.

It’s GMO and hydrolyzed (extra hydrogen molecule). Not healthy at all! Olive oil has healthy fats, is anti-inflammatory, and is heart-protective.

Canola oil is GMO, and it’s best not to do anything synthetic, esp when one has a medical issue. 100% Italian or Portuguese olive oil is not cut with other cheaper oils.
According to Healthline and others, Olive oil is rich in monounsaturated oleic acid and is anti-inflammatory. Olive oil protects against stoke, heart diseases type-2 diabetes, and Alzheimer’s.
Canola oil is highly refined. Some studies show that a high ratio of omega-6 to omega-3 can raise your risk of certain diseases and conditions, such as Alzheimer's, obesity, and heart disease.

sregiani, Was the reason your doctor your doctor told you not to get your heart rate up related to your ET or some other condition/reason? This is in direct contrast to what my MPN specialist (hematologist) has said to me. I am very active (running, tennis, hiking) and my doctor has strongly encouraged me to do these activities. And in fact I feel so much better when I am able to get a 30-minute aerobic activity in - I have more energy throughout the day when I do (which I know feels contrary to what you might expect!).

My ET has been relatively stable for the past decade.

From what I remember, low-impact regular exercise helps lower cortisol levels. I’ve got a somewhat stressful job and was only diagnosed w/ET -JAK2 six months ago.

Hi Isabelle,
My name is Rayna. I was diagnosed with ET/pre fibrotic myelofibrosis (the two docs I see aren't sure which one) in September 2021 with platelets in the 800s. I was initially started on hydroxyurea 500mg twice a day. It made me feel awful. No nausea, just really tired and weak. I was put on Pegasys in January 2022. No side effects, but insurance issues have me back on hydroxyurea as of May 5, 2023 . Before going back on it, I researched how to avoid hydroxyurea side effects and read on medline.com that folic acid supplementation helps with the side effects of hydroxyurea so I started 400mg once a day the same day I went back on hydroxyurea. Some days I feel a little less energetic, but nothing like before. I find that exercising every day, even when I don't feel like it, helps, too. Give eating healthy, folic acid and exercise a try. It helps me a lot!

does anyone have the following rare blood cancer essential thrombocythaemia - Ive just been diagnosed

Hi @jola13, there are several members living with essential thrombocythemia (ET) here like @shenriq @jbgeorge @jackt00 @bonnieshaffer @remo1110 and many others who have this blood condition.

In addition to this discussion, you can use the Search bar to find several other topics related to ET.

Jola, have been tested for genetic mutations that may help determine treatment options? What treatment plan has been recommended for you?

Yes , me also I’m taking hydroxyurea now 1500. My platlets were in 900’s now 500’s . I have to admit it has helped brain fogginess and lethargy

This is good to hear, thank you.
My platelets were over 1000, now around 940 after three weeks on Hydroxyurea. How long did it take for your brain fog and lethargy to improve to the 500’s? I still struggle a lot at the moment with these, also frequent headaches.