← Return to Essential Thrombocythemia (ET): foods, diet, nutrition?

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@sregiani

Early on, I did an online search for ways to lower platelets, and then I talked to my doc. In my case, he said these were all good ideas and wouldn’t hurt, but not to go overboard.

1. Regular weight-bearing and stretching exercises. Not aerobic-style, but the recommendation for me was to do yoga. Now I work out formally 3-4 times weekly and try to walk outdoors or ride my bike a couple times a week. Sorry, but I can’t remember why not to raise my heart-rate, just that it was important not to – so ask your doc.
2. Reduce stress. Yea, not quite so easy, and also why yoga helps.
3. Homeopathic arnica. I take 30c/daily, which for me does not interfere with 81 mg aspirin/daily.
4. Diet: add some raw garlic a few times a week or daily. Best way I found was to smash a clove onto the side of a salad bowl, then mix in some good quality Italian olive oil and balsamic vinegar. Add greens and salt and pepper. Do NOT ever use canola oil. BTW: Cooked garlic does not have the same effect on platelets.
5. Good foods to be eaten frequently: Salmon, dark fruit (think Berries), mushrooms, cinnamon
6. Supplements: Ginseng, gingko biloba and resveratrol are supposed to help, but ask your doc about dosage.
7. Also ok in moderation is coffee (without sweetener or artificial stuff - I drink mine every morning with oat milk and sprinkle in some cinnamon) and a 5-oz glass of red wine at dinner/evening.

To this last one, I laughed! Who knew? Coffee and red wine make me smile.
My platelet count is holding in the 500's, and the hang-over headaches are now minimal.
Talk to your doc. Hope this helps 🙂

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Replies to "Early on, I did an online search for ways to lower platelets, and then I talked..."

Thanks for all the info: garlic, I'll make sure to add some more in my food after cooking.
I had no idea about the canola oil. And yes, I'll ask the doctor about supplements.

Great news for coffee (I looooove coffee LOL) and wine (cheers to that).

Did you get an explanation of why no canola oil?

Thanks, Eileen

sregiani, Was the reason your doctor your doctor told you not to get your heart rate up related to your ET or some other condition/reason? This is in direct contrast to what my MPN specialist (hematologist) has said to me. I am very active (running, tennis, hiking) and my doctor has strongly encouraged me to do these activities. And in fact I feel so much better when I am able to get a 30-minute aerobic activity in - I have more energy throughout the day when I do (which I know feels contrary to what you might expect!).

My ET has been relatively stable for the past decade.