← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@kelliw

This morning my BP was 148/102. Just took it and it was 176/100. Just picked up the clonidine patches. Will put on tomorrow. My BP is usually around 154/80, so definitely higher. My dr. said maybe it is higher because my heart hasn't worked for so long, that now it is high horsepower mode? I haven't heard of that before, but the patch should help. I feel better today-no dizziness and my chest doesn't feel tight. Went to church and took my mother-in-law to lunch for her bday. Going to try to fit in 9 holes of golf soon. Thank you so much for being there to bounce things off of! 🙂

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Replies to "This morning my BP was 148/102. Just took it and it was 176/100. Just picked up..."

Hmm🤨I am not a doctor, I don't portray one on TV and I didn't stay in a Holiday Inn Express, so I can't comment on his comment...but it kinda makes sense. I guess? If the drug is supposed to decrease the myosin, enable the heart to relax and then beat more free, then maybe? It's maybe not used to being "normal", therefore, now with help from Camzyos, it's acting more normal and I just don't know! I'm glad you're better today. I hope you enjoyed church, lunch and golf. Life can be difficult and those special moments make the difficult ones easier to deal with. Having a heart issue, like we do, is hard to deal with sometimes. Anxiety creeps in, doubt, and wonder...but God is in control. Always and forever! I'm honored to be a sounding board for you 🙂