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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)
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@karukgirl

Whoa! That IS high BP 😮
Does he think it may be a side effect of Camzyos? Have you had high BP before? I hope you get re-checked sooner than later...how scary it must be! Sailing along, doing awesome and then this. Do you think you're anxious about lowering the dose and it may be causing you stress? Have you started the Clonidine patch yet?

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Replies to "Whoa! That IS high BP :o Does he think it may be a side effect of..."
kelliw | @kelliw | May 28, 2023

This morning my BP was 148/102. Just took it and it was 176/100. Just picked up the clonidine patches. Will put on tomorrow. My BP is usually around 154/80, so definitely higher. My dr. said maybe it is higher because my heart hasn't worked for so long, that now it is high horsepower mode? I haven't heard of that before, but the patch should help. I feel better today-no dizziness and my chest doesn't feel tight. Went to church and took my mother-in-law to lunch for her bday. Going to try to fit in 9 holes of golf soon. Thank you so much for being there to bounce things off of! 🙂

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