How did your PMR begin?

I 100% agree that stress plays a big factor also.

Out of the blue really. Woke up one morning and couldn't get out of bed, the pain was unbearable. Neck, shoulders, arms, hips, knees and even buttocks. Sadly, my GP didn't diagnose PMR and was treating me for Osteoarthritis. So I ended up going privately. That was in Dec 2019. By Mar 2020 GCA kicked in too. I've been slowly tapering ever since with a bit of yoyoing along the way. I'm currently down to 5mg and so far so good. I can't make up my mind whether to continue staying on 5mg for the whole of June too or to venture to 4.5mg.

He started me on prednisone 3 .5 tablets once a day for 2 weeks then 2 1/2 for 2 weeks then 2 for 4 weeks then 1 1/2 for 2 weeks then 1 for 4 weeks then 1/2 no time limit. I would get head aches, sore neck, shoulders sore back sore hips, the pain would make me nauseous . My doctor changed my medication to 1/2 .5 milligrams tablet to 1 .5 milligram tablet for 4 to 5 days the back to 1/2 .5 tablet

Hi. About glucose levels: mine definitely went into the high range after just two weeks on prednisone. I tapered from 30mg. to 25mg a couple of days ago and maybe that will help. Being in the “pre diabetic” range (134 blood glucose level) has made me very thirsty and caused some weight loss (not good). I am seeing my Dr. this Tuesday and hopefully will get some answers on how to proceed. I am also not eating anything that would add to this increase in blood glucose level. It’s great that your levels are in the normal range. One less side effect for you to concern yourself with on this long journey. Maybe mine will go down as I taper, here’s hoping.

I notice a theme that resonates with my onset experience, and that is injection. In the year before my onset, 2018, I experienced a botched flu shot injection on my right arm. The guy was chatting his head off, standing above me at the wrong angle, too big a needle... nightmare, basically, and he should have been fired. He wasn't, and I just suffered. I spent nearly a year going through unbearable pain in that arm, then a frozen shoulder, doctors telling me I am nuts, that it was a flu shot reaction (I never have had a reaction to a shot in my life), and that I need to just suck it up. Finally went to my orthopedic doctor, who took me seriously because he had actually had the same experience. MRI showed damage. A year later is when the PMR symptoms started in, and my left arm was hurting, and I attributed it to overuse from the injured right arm. I went back to the same doc, and he said, no, you likely have PMR. I cannot prove it, may just be coincidental bad luck, but I strongly suspect the PMR was induced by the botched injection.

For three years I had been very stiff getting out of a car. I was also weaker in my legs during these three years. However, I really didn’t have any pain at all. I believed it was from permanent afib as did my heart doctor. Then in early December of 2022, I was working a job which called for being outside n 30 degrees for around 8 hours. It was nothing I hadn’t done before but this time I paid a big price. The pain that came on was everywhere and the burning and stiffness was beyond. The eight hours sitting in the cold triggered me into the worst pain I have ever known.

I cant take predisone bad side effects for me now no one will help me just send me here and there what can I do I take ibuprofen and tramadol to take edge of any help would be so appreciated ☹

Wanted to get back to you after my most recent Dr. Visit re glucose levels (mine 134). She was not concerned as they were not in the dangerous level (over 200). I am also watching what I eat so as not to contribute to increased levels. I am beginning to taper my daily prednisone dosage and she said the blood glucose levels would go down as a result. I will be at 20 mg for the next two weeks and will get bloodwork done in 10 days. I hope to report that blood glucose levels will have then stabilized in the normal range.

I had Covid (a moderate case of Alpha) in Nov 2020, and the migrating, "roving", myalgias began with the onset of Covid. I got over covid after 2 weeks, but the myalgias never disappeared. Then April 2021 I woke up and couldn't get out of bed or walk. The pain was excruciating and the stiffness unbelievable. I was a healthy, fit, trim 52 yr old woman and in one day crippled and functioning like a 99 yr old. A month later it was suspected that I had PMR. I am way too young and healthy to have expected this diagnosis. On an interesting note, my MIL got Covid in Dec 2019 before we knew what it was, and 2 months later woke up one day screaming in bed, after numerous doctor appts was finally diagnosed with PMR. What's with Covid and the Covid mRna that has triggered this disease?? Are the doctors even asking this question?

how are the Kevzara treatments going? My Rheum wants me to start since Methotrexate isn't ok for me to take due to warnings of seizures. I would love to hear how the Kevzara does for you?