Just diagnosed with tortuous colon

My gi says that mineral oil is benign and fine to use. Though you would assume Smooth Move tea would be gentle, it actually is much stronger than the Senoket tablets, especially if you steep it 15 minutes as directed. Not surprised at your result. A low fiber diet is also advised. Sounds like you are doing all the right things! Glad they are working for you!

What is your intermittent fasting schedule?

I assume you maintaining a healthy weight.

When I need a change, I will try the Metamucil capsules. Does the powder work for you too and you simply opt for the convenience of capsules?

@marmoldav me too! I love it.:)

I too have redundant and tortuous colon and IBS-C. I used Miralax for 10 years and added Citrecil for 5 years during that time. Don’t like Miralax as I have a weak sphincter. After my last colonoscopy had several months of issues with not being able to eat, nausea, loose stools. Staying away for Dairy helped. But started trying Magnesium. Magnesium Citrate was to harsh for me so my Dr. Recommended SLO- Mag. That is working better for me. Now I am adding some fiber, trying benefiber but not sure it is helping either. Also taking nortriptolyn for the the IBS symptoms and the gut brain issue. Not perfect yet, but an improvement. Gaining some weight again.

I have complained for years that I can feel food to feces travel through my intestines. With doctors smiling and knodding like I'm nuts. Suffering with abnormal unexplained abdominal pain. For over two decades I have been thinking I was crazy for having pain that simply could not be explained. Which takes a toll not only physically but mentally as well. Come to find out I was previously diagnosed with a redundant tortuous colon in 2017, during my second unsuccessful colonoscopy. Which I am just learning in 2023 after having a positive Cologuard test. Come to find out I'm not crazy. All these years I have been reveling in redunt colon symptoms. With nine different episodes of severe vomiting for 3 or 4 days respectfully with each bout. My constipation is extreme and I carry massive amounts of stool. I have used everything, stool softeners, laxatives, metamucil, magnesium citrate, prep kits. I am currently using two laxatives daily to keep me going every two days. So, I am still searching for answers. Which has brought me here. Praying one of you experts has found something that works.
Currently, I'm just full of shit!

I really truly think the squatty potty (Squatty Potty Simple Bathroom Toilet Stool, White, 7" https://a.co/d/gCayJas) helps so much. The normal persons colon needs help getting in to the right position so people with extra colon really need help getting it in the right position and this is the thing to do it. If you're out and about, at restaurant or someone's house, look for something about the same height to use, a bathroom waste can usually works. You're already doing anything else I can think of suggesting.

@jkarmazin i never liked over the counter "fiber". Found they absorbed all the water from my system instead of helping and adding it. I take magnesium aspartate at bedtime for overnight cramping. I also actually found that eating an apple a day added fiber!! Also dried apricots and prunes. I also occasionally take Betaine HCL with Pepsin to help my food metabolize since my sigmoid colon was taken during colostomy resect surgery and thyroid gone, I believe 2 out of the 3 mechanisms of metabolism, and a diagnosed rectal issue as well. Maybe you are not metabolizing your food and therefore not only hard to pass stool, not getting the nutrients you need from your food.

How horrible for you. I know what works for one person may not help another, but the only thing that breaks thru for me is Australian black licorice. Works better for me than miralax.

Hello group. I just found this group and need help! I have tortuous colon that has caused severe constipation. However, I have a BM every day but do not fully defecate and have a lot of gas and bloating. My Gastroenterologist put me on a cleansing dosage of Miralax and told me to repeat as necessary. I did the routine twice but didn't feel a lot better. Then he put me on 3 capfuls (morning, mid-day and night) of the Miralax a day and told me to stay on that routine. This was causing bathroom emergencies and many times I did not make it. I then cut back to 2 capfuls, same problem, then 1 capful. The bathroom emergencies are much better but I cannot sleep at night. My stomach is constantly making noises and I have to get up several times during the night because it feels like I have to go but it's only gas. I have now cut back to a half a cap of Miralax but still noisy stomach and gas. I have read that some of you take Metamucil and it helps. I thought that too much fiber caused gas and already have too much gas. I am lost at what to do!

I was given the directions to take two Metamucil capsules each morning with a big glass of water. I get up early just to be able to do that and drink a cup or two of coffee. This helps me have a BM before I go to work in the morning. I also drink as much water as I can during the day. In addition, I have found that doing Intermittent Fasting has helped along with chewing my food really well. I think it is because there is less food to be digested. I also watch how much carbohydrates and dairy I consume. This has worked well for me with very few flare ups.