Anyone else have a Redundant / Tortuous Colon?

@marmoldav me too! I love it.:)

I too have redundant and tortuous colon and IBS-C. I used Miralax for 10 years and added Citrecil for 5 years during that time. Don’t like Miralax as I have a weak sphincter. After my last colonoscopy had several months of issues with not being able to eat, nausea, loose stools. Staying away for Dairy helped. But started trying Magnesium. Magnesium Citrate was to harsh for me so my Dr. Recommended SLO- Mag. That is working better for me. Now I am adding some fiber, trying benefiber but not sure it is helping either. Also taking nortriptolyn for the the IBS symptoms and the gut brain issue. Not perfect yet, but an improvement. Gaining some weight again.

I have had problems with my digestion since I was 20. I still do. Has anyone here tried a massager for stomach to relieve constipation? Has anyone heard of MoWoot? Especially with redundant colon, the massage may help?
https://www.mowoot.com/en/
I am not sure if I can get it, if it works it's worth it for me to get it.

I have not used a massager, but I do manual massage on my belly every morning! And is does help.

My son found a manual massage guide from England's National Health Service. Compared to US medicine which is drug and procedure-focused, NHS seems to focus on what one can do at home.

I do them every day, usually at bedtime. I feel better afterwards and I think they really help!
https://www.wchc.nhs.uk/resources/self-abdominal-massage/
Here is the link:

Yes, I have that same diagnosis too now 14 years back from my only colonoscopy which was incomplete. It comes up now again only because I am supposed to have another to qualify to be a kidney donor. I am looking for a genius doctor who has conquered techniques of completing at least 90% of incomplete colonoscopies.

The only other symptom I have is a very occasional passing of mild pain across my abdominal, maybe a couple time a year. That is it. Have travelled/ lived in India, Pakistan, Peru, Mexico, and such too many times to count the number of countries, and have never given it a thought.

After the only colonoscopy I researched deeply and discovered that this is an identifiable problem in Sweden. Not long ago my daughter figured that between her and her dad’s statistics, I must be 12% Swedish. No wonder that I love Scandinavia!! Apparently it is more common there. People who died from other causes with undiagnosed and untreated redundant colon were discovered with it. I rested my own case when the doctor who could not continue to the cecum prescribe a barium enema and who told me that if I was carrying a polyp he would operate. He could not offer me a single statistic in spite of his absolutely overflowing and cramped waiting room.

I am now a 73-year-old female with no new symptoms. I have no advice and believe in free choice and informed consent and have much too much contact with the medical world because of familial loss of kidney function. There are bad doctors.

Bravo Mayo! Another family member has survived 12 years and 2 transplants with Amyloidosis!

I found some abdominal massage videos on You Tube , and do them regularly. It helps. Your pamphlet from the NHS looks terrific….will try this system, which appears to be very thorough. Thank you!

I have complained for years that I can feel food to feces travel through my intestines. With doctors smiling and knodding like I'm nuts. Suffering with abnormal unexplained abdominal pain. For over two decades I have been thinking I was crazy for having pain that simply could not be explained. Which takes a toll not only physically but mentally as well. Come to find out I was previously diagnosed with a redundant tortuous colon in 2017, during my second unsuccessful colonoscopy. Which I am just learning in 2023 after having a positive Cologuard test. Come to find out I'm not crazy. All these years I have been reveling in redunt colon symptoms. With nine different episodes of severe vomiting for 3 or 4 days respectfully with each bout. My constipation is extreme and I carry massive amounts of stool. I have used everything, stool softeners, laxatives, metamucil, magnesium citrate, prep kits. I am currently using two laxatives daily to keep me going every two days. So, I am still searching for answers. Which has brought me here. Praying one of you experts has found something that works.
Currently, I'm just full of shit!

I really truly think the squatty potty (Squatty Potty Simple Bathroom Toilet Stool, White, 7" https://a.co/d/gCayJas) helps so much. The normal persons colon needs help getting in to the right position so people with extra colon really need help getting it in the right position and this is the thing to do it. If you're out and about, at restaurant or someone's house, look for something about the same height to use, a bathroom waste can usually works. You're already doing anything else I can think of suggesting.

@jkarmazin i never liked over the counter "fiber". Found they absorbed all the water from my system instead of helping and adding it. I take magnesium aspartate at bedtime for overnight cramping. I also actually found that eating an apple a day added fiber!! Also dried apricots and prunes. I also occasionally take Betaine HCL with Pepsin to help my food metabolize since my sigmoid colon was taken during colostomy resect surgery and thyroid gone, I believe 2 out of the 3 mechanisms of metabolism, and a diagnosed rectal issue as well. Maybe you are not metabolizing your food and therefore not only hard to pass stool, not getting the nutrients you need from your food.