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Has anyone heard of VEXAS syndrome?

Blood Cancers & Disorders | Last Active: Aug 29 3:42pm | Replies (44)
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@mayo2290

Hi, yes, I have Vexas, can’t get the meds for treatment, very expensive, Medicare insurance won’t cover them. Wish your dad the best. May I ask how old is he, I’m 73, was told I was to old.

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Replies to "Hi, yes, I have Vexas, can’t get the meds for treatment, very expensive, Medicare insurance won’t..."
Becky, Volunteer Mentor | @becsbuddy | May 27, 2023

@mayo2290 Insurance told you that you were too old?! Did you try calling them? Have you discussed this with your doctor to see if they might call? Insurance companies frequently have second thought when doctors call them and explain how serious the situation is.
Does your doctor have any other options for you?

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