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Kidney Transplant: Does your creatinine bounce around?

Transplants | Last Active: May 27, 2023 | Replies (68)

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@rosemarya

@mariags, It has been a few weeks since your son had the nephrostomy tube inserted and I'm wondering if the procedure was successful in resolving the 'plumbing' issue that the doctors had diagnosed. It is not a procedure that I am familiar with in my transplant experience, however as a kidney (and liver) recipient I am familiar with the complexity of our plumbing and the concern at seeing blood in urine.
How is your son coming along? Does the tube get removed? What is the next step for him and his kidney health?

@kfn57, I see that you are gong to be celebrating your transplant anniversary in a few days. June is next week! What will you do to honor the special day?
Here us a great place to read what others are doing, and for you to share your own idea for celebrating/honioring the special day:share your own idea:
- Happy "Transplantiversary"!
https://connect.mayoclinic.org/discussion/happy-transplantiversary/
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@swankie, Please accept my belated Welcome to Connect! I hope that your "everything" that was affected by the UTI has resolved itself to normal. Those 2 months must have been l-o-n-g 2 months. It is interesting that I was experiencing some UTI symptoms at the same time as you posted, perhaps that explain how I missed your post. Anyway, I was started on an antibiotic based on the office urines sample, and then switched to a different antibiotic after the lab culture showed a specific bacteria was resistant to the first antibiotic. My transplant team at Mayo Rochester has requested that I get a urine culture in addition the dipstick urine test. So, this is a routine that my PCP is agreeable to adhere to. Has your kidney transplant team ever requested a urine culture when you have a UTI?
Congratulations on the Happy Creatinine Levels.

A TIP that works for me to get enough water is that I fill a pitcher in the morning and pour water from that throughout the day. That way I don't forget. My creatinine has been stable, so it might be what is working for me.

@hello1234, I hope you are okay. What is happening in your kidney transplant world?

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Replies to "@mariags, It has been a few weeks since your son had the nephrostomy tube inserted and..."

Good morning @rosemarya 😊
It's always wonderful to here from you! I am happy to report that my three year kidney transplant anniversary is coming up soon (in July!). Mayo Clinic called me to schedule my annual labs and visit. I think this is going to be a very pleasant annual visit since my normal list of "things to discuss" is very tiny. According to my last labs, CMV is negative, BK in the blood is negative, BK in the urine is still around 7,000,000 but BK in the urine does not damage the kidney. My AV fistula in my kidney created by the biopsy is quiet and not causing any function problems currently. My creatinine is back to stable. So, I am happy to report that "All is well with me and my wonderful new kidney"! (My only current stress is my dental issues, which is unrelated to the transplant). Is everything going okay with you too?