Neuropathy moving from feet to legs

Posted by tessie63 @tessie63, May 15, 2023

I have neuropathy in my hands and feet from three sessions of chemo I had about three years ago now. I have a lot of pins and needles in both my hands and feet but no pain which is a blessing I guess. These pins and needles are none the less annoying. I drop a lot of things and am unable to open things without help. I live by myself and have had to formulate my own ways to do so many different things. I am now experiencing these pins and needles climbing up my legs and that worries me. Has anyone else experienced this? If so have they stopped there or is it possible for them to go else where in my body?

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pf42 | @pf42 | May 24, 2023

In reply to @cher27 "May I ask what type of pain pills you take for your feet at night? I..." + (show)

Arnica pain relief gelat night on the feet and legs works well for me.

John, Volunteer Mentor | @johnbishop | May 24, 2023

In reply to @pf42 "Arnica pain relief gelat night on the feet and legs works well for me." + (show)

Welcome @pf42, Thanks for sharing what provides pain relief for your feet and legs at night. How long have you had neuropathy?

pf42 | @pf42 | May 24, 2023

For about 6 years. It is post laminectomy surgery for spinal stenosis.

mitfit | @mitfit | May 25, 2023

That sounds like what I experienced. It started in right foot, then the left, and then moved up the legs, progressively over time and now also in hands. I’m not aware of any way to stop it …

tessie63 | @tessie63 | May 25, 2023

To misfit I am sorry to hear how far your neuropathy has gone! Do you have pain with it or just the numbness and pins and needles? I have no pain but the numbness is not fun either. It is hard to know what life will bring us with this illness. I think, for me, my ability to get around and do more activities has been so limited. I can’t drive anymore and I hate being dependent on others for help. I feel like life is passing me by these days. Neuropathy can be so debilitating! I guess we just have to make the best of our lives such as they are.
After all, what’s the alternative? I wish you all the best in fighting this illness. It is nice to know we are not alone with this struggle.

lecowing | @lecowing | May 25, 2023

In reply to @tessie63 "To misfit I am sorry to hear how far your neuropathy has gone! Do you have..." + (show)

Same with me, no pain but numbness gradually getting worse.

domokane | @domokane | May 25, 2023

I have PN that moved up from feet to give me some sensory issues in hands and knees. Not total numbness but a reduced sense of touch. I have since changed my diet - no sugar or alcohol - and I am sleeping more and I think it is getting better.

margaretob | @margaretob | May 25, 2023

In reply to @domokane "I have PN that moved up from feet to give me some sensory issues in hands..." + (show)

My oldest son and myself have PN...he sent me something that helps a lot. ULTIMATE OMEGA XL...1280...it does take the pain down from both knees when I get an attack. NO SUGAR and NO ALCOHOL is right, but whatever is in this stuff greases up the knees and they don't hurt so very much.
I dont know if this would help. It does somewhat for me and it is 28 years this month with the neuropathy...GOD BLESS..M.

tessie63 | @tessie63 | May 25, 2023

In reply to @lecowing "Same with me, no pain but numbness gradually getting worse." + (show)

I have heard from so many now who have numbness but no pain from neuropathy. It’s nice to know that I am not alone with this feeling but it would be great to find something that actually works to alleviate it. I find it is bad in my hands and I tend to always be fiddling with them. The fact that they feel like I have a coating of something on them doesn’t help. I will keep searching for an answer and if I find one I will let you all know.
All the best

lecowing | @lecowing | May 25, 2023

Same here. I have hearing aids and it is getting harder to put them in. I am turning 86 in August so I guess I should be thankful I can still write, but not touch type any more.