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Ulcerative Colitis - Vedolizumab
Autoimmune Diseases | Last Active: Jan 20 8:16pm | Replies (3)Comment receiving replies
Hello,
I've had UC for about 20 years now. It didnt use to bother me much. Once ina blue i'd have a flare and it would go away on its own. Last September it got really bad, I started seeing alot of blood loss in my stool, my blood count drops. The first day i noticed alot of blood i passed out and was hospotalized for two week trying to figure out where the bleeding was coming from.
I was started on Entyvio, been taking it for about six months an djust found out through a colonoscopy that it did nothing for me. This was dissappointing to hear. I was looking forward to getting better. Seeing blood in my stool send me into anxiety and reminds me of the day i passed out. Right noe we are using 10-20 mg of prednisone to control the bleeding when it occurs..
Doctors are talking about starting me on Remicaide. Has anyone tried this and it was successful.
Replies to "Hello, I've had UC for about 20 years now. It didnt use to bother me much...."
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My daughter was diagnosed with UC about 7 years ago at age 22. She was poorly controlled but was getting by with oral sulfasalazine and watching her diet until last summer when she had a massive flare. She was in the hospital for about a week and was on Prednisone until she started remicade. She felt better almost immediately and it has been a real game changer. Now she goes for infusions every 3 months and is doing well.