The plan is to try the Camzyos for the next three months and see if it truly helps with all my symptoms. If not I’ll be on the surgical route with a mitral valve surgeon and HOCM surgeon taking turns at fixing my heart.
It’s only my first day taking the medication and I’m not feeling well at all. Bloating stomach, headache, back pain, fatigue and ringing ears. I’m monitoring my ecg on my Apple Watch and it’s pretty wild. Trying to not get too anxious about it.