12 months free of disease with clear CT scans: What is next?

Posted by lottie60 @lottie60, Mar 29, 2023

My husband has been clear of disease for 12 months with clear CT scans. The cancer disappeared after 12 sessions of chemo which the oncologist described as a miracle. He was diagnosed with stage four, mets to liver, however mets disappeared after 3 chemo sessions, he was not a candidate for surgery.
The CA19 market has been rising over the past 4 months, last result marker of 500 - a further CT and MRI later this month …..Oncologist states she will not act in CA19 marker alone. My husband is active, eating well and maintaining weight and feeling very well - we are a little concerned and wondered if anyone has the same experience
Thanks for any info

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

andysi | @andysi | May 7, 2023

In reply to @sprinter345 "What chemo did your husband have ? Your post is hopeful." + (show)

12 sessions of folforinox every fortnight. NEDafter 9 but oncologist advised to complete the course to get rid of any lurking gremlins.

krfinlayson | @krfinlayson | May 8, 2023

I was diagnosed with stage three in Jan 2021. Had Whipple surgery followed by 12 folfirinox treatments. All clear for 2 years then ca19-9 started to climb. CT showed nothing. Liver enzymes started to climb. Still nothing on CT. Due for bloodwork and CT again in a couple of weeks, so we’ll see. I am feeling ok, but am concerned. So is oncologist. So we wait. He is trying to get a PET scan, but no word yet.

gardenlady1116 | @gardenlady1116 | May 9, 2023

In reply to @krfinlayson "I was diagnosed with stage three in Jan 2021. Had Whipple surgery followed by 12 folfirinox..." + (show)

Thanks for sharing your story. Hope the outcome of the scan is favorable

andysi | @andysi | May 10, 2023

In reply to @gardenlady1116 "Thanks for sharing your story. Hope the outcome of the scan is favorable" + (show)

Like you my markers increased. Had a meet with my oncologist today and bad news. A 19mm tumour has reappeared. Scheduled for 12 folforinox chemo sessions next week. Am i worried.....too right i am. Do i have a positive outlook... for sure. Was blessed with 14 months of NED so will hang on to a repetitive outcome. I do hope 《gardenlady》you have good news. Be strong,Be fearless

Colleen Young, Connect Director | @colleenyoung | May 24, 2023

In reply to @andysi "Like you my markers increased. Had a meet with my oncologist today and bad news. A..." + (show)

@andysi, I'm sorry to hear of your bad news, but appreciate your positive outlook.

How is chemo going?

gardenlady1116 | @gardenlady1116 | May 25, 2023

In reply to @andysi "Like you my markers increased. Had a meet with my oncologist today and bad news. A..." + (show)

Scheduled for surgery June 21st. I have gone from borderline operable to operable.

k13 | @k13 | May 25, 2023

In reply to @gardenlady1116 "Scheduled for surgery June 21st. I have gone from borderline operable to operable." + (show)

Garden lady- what was your stage and what was your treatment that now allows you to be operable? thank you. Good luck and God Bless for June 21.

Colleen Young, Connect Director | @colleenyoung | Jun 5, 2023

In reply to @gardenlady1116 "Scheduled for surgery June 21st. I have gone from borderline operable to operable." + (show)

That is great news, @gardenlady1116!

How are you feeling about being ready for surgery? Have you seen the discussions about tips for recovery?

gardenlady1116 | @gardenlady1116 | Jun 5, 2023

In reply to @colleenyoung "That is great news, @gardenlady1116! How are you feeling about being ready for surgery? Have you..." + (show)

I am anxious, so many things can happen with surgery. I live alone so I am hopingI will be able to manage by myself soon.

sairakhatoon | @sairakhatoon | Jun 5, 2023

Your story is so inspirational , I hope your husband is doing better then ever before !
Please can you share the age of your husband when he was diagnosed ?