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Spinal CSF leaks

Spine Health | Last Active: Mar 3 10:40am | Replies (27)

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@colleenyoung

Welcome @cody708. I moved your question about cerebral spinal fluid (CSF) leak to this existing discussion:
- Spinal CSF leaks https://connect.mayoclinic.org/discussion/spinal-csf-leaks/

I did this so you can read previous posts and connect with other members like @jenniferhunter @wcf @kygirl58 @janblue @summerstar @cmweston and others.

If you would like to request an appointment at Mayo Clinic, here is all the information to get started http://mayocl.in/1mtmR63

What options are being suggested by your ENT?

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Replies to "Welcome @cody708. I moved your question about cerebral spinal fluid (CSF) leak to this existing discussion:..."

Since my last post, thankfully I have gotten into the Mayo Clinic. I had surgery on June 26th. Unfortunately they found 3 more leaks and will need another surgery. Also bringing in a neurosurgeon to figure out why I have so much pressure building up. With them talking about cutting the top of my skull and pealing back my scalp and 100% chance of losing my smell it gets scary. Then I saw this at the Mayo:
“We treat the untreatable
Fix the unfixable
Cure the uncurable”
Something about that made me feel better. I know I’m at the best hospital with the best doctors! Still scary, but I wouldn’t want to be anywhere else.