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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: Feb 22 1:06pm | Replies (294)Comment receiving replies
Elaine,
Thanks for sharing! I’m sorry you’re going through this, but it’s amazing that you are not symptomatic. I’m still new to this and know that every person has a different story. I was very symptomatic and knew something was wrong and thus, the need to move quickly and treat. It’s a terrible thing what this can do to you mentally. So far, for me, daily meditation has been the most helpful for keeping me present and happy. Obviously, having strong support around you helps too. I think it can get frustrating when people try to relate on some level and fall WAY short. This is one of the main reasons why I wanted to meet others like me. Connect by private message if you would like to communicate more privately.
Replies to "Elaine, Thanks for sharing! I’m sorry you’re going through this, but it’s amazing that you are..."
How did you do on treatment? Did you have any side effects? What symptoms did you start to experience? Are you feeling better now as I know there is no cure for what we are dealing with but, hopefully, there is some light at the end of the tunnel. It is a scary thing to be told you have cancer.
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Hi @trevtwin, along with @elainejarrett and @trixie1, you can also connect with @cdwilm27 @reneemp @stankent and others who have experience with SMZL.
You'll notice that I removed your personal email address. Mayo Clinic Connect is a public forum. We recommend sharing personal contact information using the secure private message function. I might also add that by sharing here in the forum, you are connecting with several people where all can benefit from group support.
What kind of meditation do you do daily? Do you use an app that you might recommend?