← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@kelliw

Good morning! I am on day 55 of Camzyos and am blown away each day at how great I feel! I feel "normal" again! Sunday my husband and I took a walk at the Field of Honor, honoring our veterans and all who are currently serving our country. I was so thrilled that I could walk the mile and a half! Yesterday I took my 2nd graders on a field trip and then played in our spring lawn bowling league and walked 7,787 steps!!!! 2.9 miles! Yippeeee!!! I am also down 7 pounds!! I am so thankful my cardiologist put me on this medication. It hasn't been easy on him. He has had to jump through a lot of hoops, but I will be forever grateful. I see him tomorrow for my 2nd ECG follow-up. Just wanted to share my good news. 🙂

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Replies to "Good morning! I am on day 55 of Camzyos and am blown away each day at..."

Please let us know if your ECG shows anything different. That is great news that the drug is working for you and your progress is encouraging for me - so thank you!!

@kelliw, you're like the "poster child" for positivity, enthusiasm and encouragement! Your zeal is reflected in your words and outlook. I am so excited for you that you are doing so well. Looking forward to hearing back from you after your echo. Thanks for sharing your good news 🙂