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MGUS monitoring: What tests do you have done regularly?
Blood Cancers & Disorders | Last Active: Dec 30, 2024 | Replies (36)Comment receiving replies
I was recently diagnosed with MGUS (IgG lambda) while being tested for other things. After having a lumbar puncture, my CSF IgG came back as low. I’m concerned that the two may be connected or that the low IgG may trigger the MGUS to progress. I live in a fairly rural area where no one seems to understand this very well. Should I be worried?
Replies to "I was recently diagnosed with MGUS (IgG lambda) while being tested for other things. After having..."
The rural area is concerning. Perhaps at least once or twice a year you can travel to a major center that treats bone cancers. I live in a very well qualified physician area and I do travel over an hour to see the MGUS/Myeloma MD, twice a year. He is the one I depend on for analysis and answers to the MGUS as my primary tells me very different information. The specialist has done a fellowship in the MGUS/Myeloma disease and works at a cancer hospital. They are way more qualified than the local GP in this disease. IT is an uncommon cancer and not many local doctors are familiar with this disease. I love my primary but she knows next to nothing about this disease. See a specialist.
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Did they do a bone marrow biopsy? That would be in pelvic bone.
I googled you test and says they look for low numbers. Check back with your doctor who ordered test? Prayers all goes well.