Charlie, I'm so happy to know you have the Cleveland Clinic in your corner. They too are world class leaders in HOCM. Praise God for that. I was already praying for you and your family as I sent that first post...and will continue doing so, because that sometimes is the only thing we can do. HCM is such a strange disease. Some have it and do not ever know they do. Some have it and only learn about it because someone else in the family has it. Some have it, only later learning what it really is after being misdiagnosed with something else for a long time. I do not know your son's circumstances, and I will not pry. HCM can be life changing for your grandkids, as knowing they have this could lead to modifying their physical activities depending on the sports they are involved in and according to their doctors advice. SCD (sudden cardiac death) is the "elephant in the room" that we all fear. When I learned that SCD could happen to me, I thought of all the times I had been hiking, ballroom/swing dancing, lifting weights, doing yoga...and it could have happened. But it didn't. I felt very blessed. It sounds like you are a close family and that is so wonderful to hear. You have been through so much already. Is their mother involved too? Do your grandkids understand their condition?

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