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Has anyone heard of VEXAS syndrome?

Blood Cancers & Disorders | Last Active: Aug 29 3:42pm | Replies (44)
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@caithanrah

My Dad has VEXAS and is currently being treated by Dr. Mangaonkar. He's 32 days post-transplant and doing great!

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Replies to "My Dad has VEXAS and is currently being treated by Dr. Mangaonkar. He's 32 days post-transplant..."
dpmcgeejr | @dpmcgeejr | Mar 23 8:59am

Caithhanrah, just wondering...did you mean that your dad had bone marrow transplant? Would love to know more. With Mayo? How old? Apparently all of us will eventually have to consider transfusions, then transplant. I'd love for your dad to share his particulars if he's comfortable. Would be very helpful as I consider all of these options.
Thanks,

Don

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