I have posted before. Mine showed up on labs as platelets were low. Platelets started dropping, then spleen started to enlarge. Blood work end 2021 was a red flag. Platelets really low, spleen quite enlarged, IGG very low and WBC and Hemoglobin out of wack. In January 2022, bone marrow biopsy/aspiration, CT Scan and other urine tests etc showed I have Low grade B cell Splenic Marginal zone Lymphoma/Leukemia - Lymphoproliferative Disorder. I am on a watch and wait and not receiving treatment until symptoms start. I have been told that feeling crummy, night sweats and fevers are the first signs. So far so good. It is a huge worry though.

Elaine,

Thanks for sharing! I’m sorry you’re going through this, but it’s amazing that you are not symptomatic. I’m still new to this and know that every person has a different story. I was very symptomatic and knew something was wrong and thus, the need to move quickly and treat. It’s a terrible thing what this can do to you mentally. So far, for me, daily meditation has been the most helpful for keeping me present and happy. Obviously, having strong support around you helps too. I think it can get frustrating when people try to relate on some level and fall WAY short. This is one of the main reasons why I wanted to meet others like me. Connect by private message if you would like to communicate more privately.