Hello @charlieandmary, welcome to the Hypertrophic Cardiomyopathy support group. Before I go any further, I would like to let you how profoundly sorry I am to hear about the loss of your son. It has only been since October and this must still feel so new to you...I can not imagine your pain. There just are no words that will help. However, you have entered into a group of people who are so supportive and kind and caring. Here you will find people that share their HCM journey and perhaps you will learn some valuable information as you navigate forward.
Knowing your three grand children carry the gene must be very scary to you. They are 11, 14, and 18, what do they understand about their condition? Are your grand children being followed closely by a cardiologist or an HCM specialist? How are you coping with all this?