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Blood Cancers & Disorders | Last Active: 1 day ago | Replies (854)
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I've just been diagnosed with MGUS this last week, and I wish I could find more to read about it. Being told that it doesn't have symptoms, while never being asked about any, it's rather invalidating. My doctor here in Colorado is retiring soon, and I have to wait for the new one in five months and hope she's a bit more forthcoming. Do you feel the same as you did before whatever led to your diagnosis?
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@mgusnewbie Welcome to Mayo Clinic Connect. You have found a great group of people here, who can share their experiences. Here is a link of what Mayo Clinic has to say about MGUS.
Suffice to say that many of us find a diagnosis of MGUS while our doctors are looking for something else! I hope your doctor has referred you to a hematologist oncologist, and will initiate quarterly bloodwork to keep an eye on things. The vast majority of us never go beyond the MGUS stage. After getting the diagnosis like you have, it is important to not dwell on it, but continue to live your life as you have been doing.
https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362#:~:text=Monoclonal%20gammopathy%20of%20undetermined%20significance%20(MGUS)%20is%20a%20condition%20in,of%20most%20of%20your%20bones.
Ginger