Lymph node dissection: What helps prevent & manage Lymphedema?

Posted by journey99 @journey99, May 17, 2023

Looking for how to manage axillary lymph node dissection to manage, control, prevent lymphedema.
Please share advice or experiences.

Thank you in advance.

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Are you noticing swelling in hand, arm, neck or underarm? I had mets to 7 lymph nodes and needed radiation. My lymphedema started almost immediately after radiation finished. Very important to start decongestive therapy asap

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I need to add to my reply-decongestive therapy if you begin to notice swelling

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I was told to never do anything restrictive on that arm or to have injections, or IV in that arm. For the most part, that has worked, I did have an MRI when I was unconscious and they Put the IV in that arm. I did have some issues for a little while after. A few other times I have had a little lymphadema but it has been dealt with fairly quickly by the therapist.
Did your doctor tell you what and what not to do?

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I've got lymphedema but not from surgery or radiation. I developed it a few months after BC diagnosis. It stunned the oncologist. Since you don't have it now, keep the lymph flowing in your body with daily dry brushing, keep hydrated and move either with rebounding, walking, etc. Another thing which is harder for me is switch between cold and hot showers. At the end of your shower turn on cold water for 30 sec up to 2 min and then switch to hot (warmer water) for the same time and alternate between the 2 for a couple of sessions. I now pump my arm every day and have to wear a compression sleeve and, of course, I've been told there is no cure for it. Good luck and keep things moving!

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@mossa

Are you noticing swelling in hand, arm, neck or underarm? I had mets to 7 lymph nodes and needed radiation. My lymphedema started almost immediately after radiation finished. Very important to start decongestive therapy asap

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What is decongestive PT?

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Special massage done by a lymphedema therapist (certified) that helps get the lymph system moving lymph fluid and reduce swelling. Mine also performed specified multilayered bandaging to reduce swelling. I was taught how to do specific wrapping and measured for compression dressings. You will most likely need your doctor to refer you, depending on your insurance. I had a very positive experience.

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I have it restricted to one breast. It’s obvious & hideous & I will spend a Florida summer wearing a miserable compression bra & a jacket. My onc denies I have it yet referred me to a specialist. All she taught me was a stroke massage that does nothing. The idea of corrective surgery makes me want to jump off a bridge.
My occurred from biopsy. There is an avalanche of it now & I suspect 20 years from now it will be looked upon as quackery. For small tumors, one can consider imaging as an alternative.

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@sugarbear0

I have it restricted to one breast. It’s obvious & hideous & I will spend a Florida summer wearing a miserable compression bra & a jacket. My onc denies I have it yet referred me to a specialist. All she taught me was a stroke massage that does nothing. The idea of corrective surgery makes me want to jump off a bridge.
My occurred from biopsy. There is an avalanche of it now & I suspect 20 years from now it will be looked upon as quackery. For small tumors, one can consider imaging as an alternative.

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I ended up with lymphedema in both breasts after my bilateral mastectomy. My breast cancer nurse gave me a soft foam ball to help drain the lymph fluid. I place the ball under each armpit and bend my elbow towards my chest, then lower my arm to gently squeeze the ball. Repeat eight times on each side. This gives me instant relief. I hope it works for you.

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@jpnnobx

I've got lymphedema but not from surgery or radiation. I developed it a few months after BC diagnosis. It stunned the oncologist. Since you don't have it now, keep the lymph flowing in your body with daily dry brushing, keep hydrated and move either with rebounding, walking, etc. Another thing which is harder for me is switch between cold and hot showers. At the end of your shower turn on cold water for 30 sec up to 2 min and then switch to hot (warmer water) for the same time and alternate between the 2 for a couple of sessions. I now pump my arm every day and have to wear a compression sleeve and, of course, I've been told there is no cure for it. Good luck and keep things moving!

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This is SO helpful! Thank you! I've had a flare of late due to inflammation/surgery in another part of the body, but inflammation nonetheless. Thank you!

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@jpnnobx

I've got lymphedema but not from surgery or radiation. I developed it a few months after BC diagnosis. It stunned the oncologist. Since you don't have it now, keep the lymph flowing in your body with daily dry brushing, keep hydrated and move either with rebounding, walking, etc. Another thing which is harder for me is switch between cold and hot showers. At the end of your shower turn on cold water for 30 sec up to 2 min and then switch to hot (warmer water) for the same time and alternate between the 2 for a couple of sessions. I now pump my arm every day and have to wear a compression sleeve and, of course, I've been told there is no cure for it. Good luck and keep things moving!

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I went to Physical Therapist as soon as my one arm is bigger than another. She mostly massaged my arm and chest. Now lymphedema is gone. My PT told me the key is to seek treatment early. Hope it’s not too late for you yet. Good luck!

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