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@rosemarya

I don't know if not wanting food for 5 months is normal or not. Normal is an individual thing. I wanted food after my transplant! I had been on a restrictive diet due to acute kidney failure and also having nausea and had lost my sense of taste. I actually was flown to MN out of ICU in KY and arrived with a feeding tube that I didn't know that I had(?). On the first morning after I arrived at Mayo, I recall the doctor asking if I would try to eat if he took out the tube, and I remember saying Yes. So I had to force myself to drink a chocolate or vanilla nutritional drink several times a day. It was awful, and if/when I hesitated, my husband would remind me the the doctor said he would reinsert the feeding tube if I didn't drink them and begin eating. (insert unkind thoughts here). I was in hospital for 2 weeks, and as the nausea improved, I was eating solid food before I was discharged to wait for a transplant.
My potassium is at a normal range, so I don't have any specific food restrictions in place. What is your transplant team saying about you not eating? Have they introduced any guidance for your nutrition? Are you nauseous?

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Replies to "I don't know if not wanting food for 5 months is normal or not. Normal is..."

@rosemarya What an endurance race for you. My weight is staying level so the team doesn't seem concerned. I live on nutritional drinks, my main source of calories. Food doesn't have an appeal to me. I struggle with being malnourished so I take a multi vitamin. I get labs drawn every week because of hemoglobin, rwd, low white blood count. Not sure if thats par for the course. I will talk to my tx coordinator Monday.