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@rosemarya
I appreciate the link.
Sorry I'm all over the place right now with my questions. So much to say and hard to break it down into the appropriate post search. I'll do better. 😆
I will keep the mask on! I don't want to be cavalier about my situation, recognize I now live with a unique situation. Others don't get it. Gah! Oh well.
So not wanting food 5 months post tx is normal and if I focus on healthy life saving choices I'll have less complications. I can do that. Is being picky about low potassium foods a problem for you?. It is a pain as mine is high so I take lokelma 3x a week.

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Replies to "@rosemarya I appreciate the link. Sorry I'm all over the place right now with my questions...."

I don't know if not wanting food for 5 months is normal or not. Normal is an individual thing. I wanted food after my transplant! I had been on a restrictive diet due to acute kidney failure and also having nausea and had lost my sense of taste. I actually was flown to MN out of ICU in KY and arrived with a feeding tube that I didn't know that I had(?). On the first morning after I arrived at Mayo, I recall the doctor asking if I would try to eat if he took out the tube, and I remember saying Yes. So I had to force myself to drink a chocolate or vanilla nutritional drink several times a day. It was awful, and if/when I hesitated, my husband would remind me the the doctor said he would reinsert the feeding tube if I didn't drink them and begin eating. (insert unkind thoughts here). I was in hospital for 2 weeks, and as the nausea improved, I was eating solid food before I was discharged to wait for a transplant.
My potassium is at a normal range, so I don't have any specific food restrictions in place. What is your transplant team saying about you not eating? Have they introduced any guidance for your nutrition? Are you nauseous?