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Does anyone have neuropathy related to MGUS?
Blood Cancers & Disorders | Last Active: May 14 11:39am | Replies (102)Comment receiving replies
My Neurologist sent me to Hematologist Oncologist. Basically released me but I can go back if something needed. Read on one of these post that someone was told the excess protein collects in feet and reason for the neuropathy symptoms. Neurologist ruled out neuropathy when he did his tests. I guess is neuropathy LIKE symptoms.
Replies to "My Neurologist sent me to Hematologist Oncologist. Basically released me but I can go back if..."
That’s a curious response to MGUS (the release from the HEM/ONC doc) as the whole “watch and wait” MGUS response requires periodic blood draws to watch for progression.
Weird. I might be casting a net further for a second opinion.
My HEM/ONC doc poo poo’d an association between neuropathy and MGUS. It is the health concern with the greatest impact at this point in my life as it restricts my activities. So I’ll keep after it.
Patty
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That’s what I’m wondering about. I’d like to know the cause of the neuropathy. I find it interesting that medical people just attribute it to Diabetes and shrug. At least mine have.
I think I’ll become more assertive about it. Sometimes one has to wear them down.
Patty