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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@redgiles

No meds have been prescribed for MGUS yet (are there any) - My endocrinologist at MD Anderson Houston noticed my high calcium and had me stop taking calcium about a year prior to MGUS diagnosis. I presume that was the 1st sign of MGUS. My tingling/numbness in ankles/feet has been for some time. I mention it to primary care whenever I see her. I did have horrible restless legs some time back, but that stopped and moved to feet. I take Gabapentin and she added Ropinirole. I have read in this site that Gabapentin is taken by some. My endocrinologist got me an appt. with Dr. in Myeloma dept. at MDA. First appt. was Feb 2023, they did full body XRAY head to toe, 24 hr urine collection and tons of bloodwork. My next follow up is scheduled for Aug 2023. Would appreciate any suggestions for meds etc. Thanks !! Jackie in Texas

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Replies to "No meds have been prescribed for MGUS yet (are there any) - My endocrinologist at MD..."

Hi Jackie, MGUS is a watchful waiting condition so there aren’t medications specifically. I’m sorry, I had phrased that poorly in my last reply. Some patients who have MGUS might have symptoms associated with anemia, osteoporosis, neuropathy, etc., which might require some treatment such as your neuropathy. You’re in great hands down there in Texas with MD Anderson. ☺️