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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Jun 15 7:51am | Replies (774)

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@loribmt

Good morning, @redgiles. I love to hear that you’re walking 2-3 miles every morning! That’s such a wonderful way to get the day started, isn’t it? It really helps to keep our lives in perspective and to encourage positive thoughts! I’m a daily walker too and excited that we’re finally having some glorious weather where I live. Spring has erupted in a showy fashion…so many flowering trees, lush bright greens and all the spring flowers are in bloom. Birds singing everywhere! Love it! It seemed like winter would never end.

In spite of your diagnosis and neuropathy, it sounds as though you’re doing really well. @gingerw has walked your similar medical path and is an amazingly strong, resilient and inspirational friend. So it’s no surprise that she’s been very helpful for you. Most of us in Connect have gone through some challenges and medical adventures so I’m happy you’ve found your way to us.
You’ve probably chatted about this before, but are you on any medications for your MGUS? What’s the treatment for the hypercalcemia?

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Replies to "Good morning, @redgiles. I love to hear that you’re walking 2-3 miles every morning! That’s such..."

No meds have been prescribed for MGUS yet (are there any) - My endocrinologist at MD Anderson Houston noticed my high calcium and had me stop taking calcium about a year prior to MGUS diagnosis. I presume that was the 1st sign of MGUS. My tingling/numbness in ankles/feet has been for some time. I mention it to primary care whenever I see her. I did have horrible restless legs some time back, but that stopped and moved to feet. I take Gabapentin and she added Ropinirole. I have read in this site that Gabapentin is taken by some. My endocrinologist got me an appt. with Dr. in Myeloma dept. at MDA. First appt. was Feb 2023, they did full body XRAY head to toe, 24 hr urine collection and tons of bloodwork. My next follow up is scheduled for Aug 2023. Would appreciate any suggestions for meds etc. Thanks !! Jackie in Texas