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Just diagnosed with pancreatic NET stage 1

Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)
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@keisham808

Hi, Teresa

Thank you! I’m so happy I found this forum as well! Yes the biopsy is scheduled in two weeks. But my mind is racing I’ve been looking on line to see how accurate is the MRIs suggestions. I know it’s really large so they can see behind it either but just wondering if anyone had something similar as it was not malignant

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Replies to "Hi, Teresa Thank you! I’m so happy I found this forum as well! Yes the biopsy..."
Teresa, Volunteer Mentor | @hopeful33250 | May 21, 2023

@keisham808

Yes, I have had cysts on the pancreas. I first had a EUS which is an ultrasound done through an endoscopy. Is this the way your biopsy is being done? I was nervous about the finding because of my history of carcinoid cancer in the duodenal bulb. A biopsy was not done, however, because it looked like a cyst, not a cancerous lesion.

I've had follow-up MRIs for several years and the size and the number of cysts has remained the same. So, I feel more comfortable now with the presence of these cysts.

We have other discussions on Connect regarding pancreatic cysts. You might find them interesting and helpful as you wait. Here are the links to those discussions:
--Can Very Small Pancreatic Cysts Have Symptoms
https://connect.mayoclinic.org/discussion/can-very-small-pancreatic-cysts-have-symptoms/
--Pancreatic Cysts
https://connect.mayoclinic.org/discussion/pancreatic-cyst/
--MRI-MRCP Cyst Newbie
https://connect.mayoclinic.org/discussion/mri-mrcp-cyst-newbie/?pg=4#comment-767495
I am wondering, were you having symptoms that led to the scan where the cyst was discovered?

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