You are in a good place then! Thank goodness for that. She's so young and having a special needs child, being single, having this awful condition...her stress level must be so high! And yours too. It is hard not to fear the septal myectomy. When I learned I needed to have it done I was stunned. Shocked. In denial. No way not me! Knowing I was in the best hands in the world, having the Lord, and trusting Him, I can say yes, yes it is very scary, and the fear is real. I got my life back and that was worth the fear, the pain, the 9" scar and two 'stab wounds'.
I think having faith in her doctor, trusting the medical team, and having a positive attitude will be so valuable.
Thank you for asking. Yes I am so much better. I no longer gasp for air, have chest pain, burning pain in my neck, dizziness, head rushes etc. I still have the disease, so there will be life long symptoms, but the obstruction is gone. That is the positive take away from the septal myectomy. It is permanent and I am not on any medications except a 81mg aspirin and vitamins and minerals. I walk every day. I can tie my shoes now without getting short of breath. I do not have disabling fatigue. Feel free to reach out with any questions about the myectomy if you want...if I can help one person by putting their mind at ease, I feel good. It's not fun, but it is not as horrible as I thought it would be. Pain, sure. Any surgery has pain. But if your daughter is healthy prior to surgery, she will do much better and her age is in her favor. She's got her mom, thank goodness. Aside from that what is she doing to cope with the stress?