Gastroparesis or slow modility colon

Posted by teresabarton @teresabarton, May 19, 2023

I was diagnosed with gastroparesis with one doctor and he sent me to a bigger university for a pacemaker.
The next university said it was not gastroparesis. This doctor had me do a Sitz Marker Test and after 7 days, I still had 58 markers left in my upper colon. He diagnosed me with a slow modility colon.
For the past 9 months I have (and getting worse) severe abdomen bloating, cramps, pain, nausea, and now lower back pain. I have been on a gastroparesis diet for 6 months with no relief. I only eat frozen yogurt and cracker for lunch. I wait to eat a more bland diet when I get home from work, knowing the bloating and nausea will get worse.
I now can only wear dresses, no pants, due to the extreme bloating and then discomfort of anything tight around my abdomen. Now I have gained 5 pounds in the last week with the same diet I have been on for 9 months.
My doctor now has me on miralax and apple juice. (During the last 6 months I have been with him, I have developed constipation in the past 3 months. Something I have never had in my 60 years of age.) I can't drink apple juice or anything except water due to the fact it also makes me nauseas.
I have tried Reglan, which made me suicidal, and erythromycin, which did not help.
Anyone have these same symptoms or and suggestions of what to do next. The doctor said I may just have to live like this. I am a very upbeat, positive person, but I can't imagine there is not something wrong to start the symptoms just in the last 9 months. I will take any help! Thank you so much.

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Profile picture for eileenb1022 @eileenb1022

hello, i really need some feedback. i have been sick for about 7-8 months and although i had my gallbladder out four weeks ago i am still sick. presurgery two different surgeons said i had more going on than just my gallbladder. i am going to see a motility doctor here in NH but im scared he willbe like most doctors and not take me seriously. i lose about a pound every day. this morning i woke up in such pain. i can barely eat which explains the one pound loss a day. i did have a stomach emptying. several months ago. this nurse practioner ordered it. the same nurse practioner who said there was nothing wrong with my gallbladder. anyway i think the test is invalid. first i never knew you were suppose to have eggs and toast. all i had was half a tuna sandwich. i saw and they told me it was normal and i just didnt empty on hour two of a four hour test. this GI wanted to put me on a antidepressent. i said no. only good thing he did was refer me to a motility doctor. i woke up in pain this morning and i dont know what to do or think. please help me.

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sorry, but since i offended people in this group i wont be back. im sure tomorrow wont go well then i will have no options but to suffer.

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Profile picture for eileenb1022 @eileenb1022

No where do I find one? What do they do? I need more testing first

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Well, I don't know where you live. You can google a homeopath doctor in your city. The treatment has no side effect and it stimulate your body to naturally heal itself. Homeopathy is a medical system based on the belief that the body can cure itself. Those who practice it use tiny amounts of natural substances, like plants and minerals. They believe these stimulate the healing process. It was developed in the late 1700s in Germany.

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Profile picture for Joanne Narna @mothermary1

Thanks for chiming in. I don’t have Gastroparesis. Eileen does. I passed my stomach emptying test fine. My severe constipation is because of no colon motility. I can’t move my bowels without meds. I was scheduled in Boston for total colectomy but canceled, rescheduled and canceled again. I just feel doctors have missed something and don’t look at the whole picture just my large colon. I’ve learned a lot going to all naturopathic doctors but I’m not any better. It is very disappointing and I’m back to a newer motility Gastro doc this month. I have some testing suggestions but it’s never easy convincing them. Since I have been on Mayo blog for a while now it just amazes me how many suffer from what you and Eileen have and also what I have. I do think someone at some point will have some idea and I’ll try it and it will help. Blessings, Joanne

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@Joanne I'm sorry, I misunderstood. I have a feeling that the Bentyl I took for years may have caused mine but not sure. Could have been the diabetes. Now Bentyl doesn't work for me. First time I took it for stomach pain I thought I had gone to heaven. I was positively euphoric. It felt so good to not hurt. Have either of you tried Bentyl? Judy

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Profile picture for eileenb1022 @eileenb1022

hello, i really need some feedback. i have been sick for about 7-8 months and although i had my gallbladder out four weeks ago i am still sick. presurgery two different surgeons said i had more going on than just my gallbladder. i am going to see a motility doctor here in NH but im scared he willbe like most doctors and not take me seriously. i lose about a pound every day. this morning i woke up in such pain. i can barely eat which explains the one pound loss a day. i did have a stomach emptying. several months ago. this nurse practioner ordered it. the same nurse practioner who said there was nothing wrong with my gallbladder. anyway i think the test is invalid. first i never knew you were suppose to have eggs and toast. all i had was half a tuna sandwich. i saw and they told me it was normal and i just didnt empty on hour two of a four hour test. this GI wanted to put me on a antidepressent. i said no. only good thing he did was refer me to a motility doctor. i woke up in pain this morning and i dont know what to do or think. please help me.

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My symptoms sound much like I’m reading from these other posts. For years I experienced much pain and other GI complaints. Much to my surprise I was diagnosed at MGH with pancreatic insufficiency and require prescription enzymes with every meal so that food can be broken down, digested and then able to move my GI tract. It’s been a couple of months using enzymes and I’m starting to gain some weight and am feeling better. Good luck to you all

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You need a new dr, a motility specialist. You need medications to increase the motility of your gi tract. Miralax will help draw fluid into your colon but won’t speed it up. Not sure why the antibiotic. Run far and fast from any dr that tells you to learn to live with such severe and disabling symptoms, especially with such few initial interventions. There is help, you just need to search a little further. Good luck!

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Did anyone discuss diet with you? I can’t eat gluten and dairy, bloating and constipation occurs when I do. Apples constipate me so I wonder if juice would do the same. How much water are you drinking a day? I have to drink 1/2 my body weight in grams or things slow down. And NO fiber supplements for me. Fiber has to come from food sources. Oatmeal will even constipate me. Exercise is VERY important. Walk some
Every day. You DONT have to live with this. You just have to find the right doctor (mine was a functional medicine doctor) to help you through this. Thoughts and hugs .

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Hello @teresabarton and welcome to Mayo Clinic Connect. I can understand your frustration. Having one doctor giving you a diagnosis of gastroparesis and then another doctor not agreeing with that must be confusing. As mentioned by @sallyw133, another opinion might be a good plan. Also, as @cpd54 mentioned diet, liquids and exercise are important things to add to your daily routine.

I have what's called, slow transit constipation. I have many (but not all) of the symptoms you mentioned. After reading many of the comments of others who have gastroparesis, I've discovered that a low residue diet has worked well for me. In addition to a low residue diet, I also have a probiotic daily, and take Miralax, twice daily and a Colace at night.

Slow motility can be caused by many factors such as neurological conditions, surgeries of the digestive tract, diabetes, etc. My problems resulted from several surgeries of the digestive tract. Do you know the cause of your motility problems?

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Get another doctor's opinion, but don't tell that doctor what the other doctors said. You want a new opinion. Wishing you the best.

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Thank you everyone! You all make me feel better. I have a phone appointment with Mayo early July and visit with them right after. So I'm praying to get answers there.
I do drink lots of water and do not take any fiber supplements. Also, I do take probiotics everyday.
My husband and I are very active. We have a mowing business, and love kayaking, etc. We don't sit inside much.
The low residue diet was interesting and I going to compare that to the gastroparesis diet that I am on.
I have no clue why this motility started, and no answers from doctors either. If I have missed something, please remind me. I'm open for any suggestions.
Thanks again for helping me out. It is nice to know I'm not in this alone. This has definitely been a life changer for my husband and me. We have always been so active and healthy, but praying God will help us through.

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I also have slow colonic motility, diagnosed via the same method as you, about 1 year ago. A GI dietician recommended that I ask my GI doctor to do the study as I was having constipation issues despite having acquired short bowel syndrome (SBS) just over 2 years ago. I have always struggled with constipation prior to my SBS. The specialized dietician really helped me more than anyone, we did all of our appointments via Zoom, I would highly recommend you connect with someone as they can individualize your diet. Since my slow colonic motility diagnosis I was started on Linzess, which works on small intestine motility but has helped some. I also take Miralax , Senna-S, a magnesium supplement, and Citrucel twice a day. I was very resistant to being on that many meds, even if most were OTC, but I am at peace with it now. A great option also is bisacodyl, 1 to 3 tablets as a one time dose,, to help clear things out as it works on the small and large intestine. I take it right before bedtime and usually it would do its job in the morning but sometimes it works faster and I would be waken up in the middle of the night. I have not had to use it since being put on the Linzess and adding in the Senna-S scheduled. Best wishes to you, hopefully your appointment in July will be fruitful!

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