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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)
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@ortho3

I’m taking 1000mg HU/ day + 81mg aspirin. It’s only been a little over a month, and platelet count has dropped dramatically (700 to 425). I’m 76, have been reluctant to take HU before. I have an appointment with my oncologist on Monday, and hope to adjust the dosage. No side effects that I am aware of!

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Replies to "I’m taking 1000mg HU/ day + 81mg aspirin. It’s only been a little over a month,..."
eileen11108 | @eileen11108 | May 20, 2023

Sounds like your fatigue has leveled off. That was a great response to HU. Hope it continues and you can lower .your dose,

Eileen

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mjpm2406 | @mjpm2406 | May 20, 2023

I take a 500mg Hydrea tablet 5 days per week and two 500mg tablets on Tuesdays and Fridays. Also a daily 81mg Aspirin. I’ve been on this regimen for five years. My platelet count was easily over 1,000 when I was diagnosed with MDS/MPN-RS-T. On the MPN side my symptoms mirror ET. My platelet numbers now fall in the 300-400 zone so I’m good. Fatigue is an issue but a 30 minute Power Nap every day fixes that problem. Once you get your medicine regimen finalized you’ll probably start feeling better and your Oncologist will most likely stretch out your lab schedule. I used to get labs every two weeks in the beginning. Then once a month after my numbers stabilized. Now I’m on a 6 week schedule.

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