Connect
← Return to Anyone take new drug Camzyos (mavacamten) for HCM?
Discussion
Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
Day 8
5mg at 0807am
Weight 266lb
No coffee, but w/glass of cherry juice
I’m about to have my first cup it’s 1300.
So about 1900-2200 I felt dizzy, it could have been I didn’t eat until late, but I’m thinking “side effect”. It didn’t last long nor was it severe but it was there. dinner was oven baked fried chicken, mashed taters ..the dizziness passed and all seemed well, I did spend the day going up and down stairs doing laundry and essential household duties. Today I feel absolutely normal. I’m not sure what’s going be on the lunch/dinner menus.
So I have noticed 1 thing which has been happening every night.
1. I sleep solid
2. I wake before my alarm (0730)
I don’t set an alarm for waking I set it to take med same day every time.
3. I have vivid dreams every night, yes sometimes I had dreams but never every night.
500mg metformin to be taken at dinner, on Monday I’m going to start light weight training at planet fitness, nothing heavy but I should be able to go 30min
I’ll see y’all tomorrow
Have a awesome day
Dave
Replies to "Day 8 5mg at 0807am Weight 266lb No coffee, but w/glass of cherry juice I’m about..."
Hi Dave-My dizziness came on during the second or third week and last for a week or two. Now it is completely gone. One day was scary-I was in my classroom, with my students and felt like I was going to pass out. I was sitting down but the room started spinning. I was able to call the school nurse and she had me lay down on the floor with my feet up on a chair, then sit up and drink water. It went away and I didn't pass out luckily. So glad that is gone! I am going to start at 24 Hour Fitness next week too!
Connect
I see that @kelliw felt dizzy too...I would be sure to mention that at your visit. You are being so thorough here on Connect, I'm sure you have it written down someplace that on day 7 ______________ (fill in the blank) happened, so this information can be charted.
Sure glad to hear the dizziness was short lived. That would be scary if you were up on a ladder or riding a motorcycle or whatever. Take it easy @starbuck41 when it comes to lifting weights. You sound like you are chomping at the bit to get back to living life again! That's a good thing. I can't wait to hear what you decided to have for dinner 🙂