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Hyperaldosteronism

Diabetes & Endocrine System | Last Active: Nov 29, 2023 | Replies (44)

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@dawn_giacabazi

This is a common response by over 90% of specialists. Sadly it's Not true! As long as I have breath in my lungs I will advocate for adrenal surgery. I have seen 17 different doctors for my hyperaldustrianism. I have been through hell and back for the last 7 years of my life and a simple 25-minute procedure resolved 98% of my symptoms! I am 15 days post op. I have not had a single blood pressure reading over 130/80 in the last 15 days. Beforehand I commonly had blood pressures in the 200's/100s with many many ER visits. Was taking four different types of hypertension medications. I am now down to one hypertension medicine which has been tapered down to the lowest dose possible, today. My kidney function was Stage 3b kidney failure and today I have been UPGRADED to stage 1 kidney disease. My GFR was 41 but today it is all the way up to 79. I had debilitating muscle cramps every single day I could hardly walk. I felt like I was 100 years old and every cell in my body hurt. I have not had a single cramp since surgery 15 days ago. I had a 2.2cm x 2cm x 2.5cm tumor in my right adrenal gland. I received pathology reports Wednesday which indicated not only did I have one but my adrenal gland was full of aldosterone producing nodules. "It looked like bubble wrap according to my surgeon ". Praise the Lord there was no cancer!! However it did look suspicious so they removed a few of the lymph nodes for biopsy and they came back negative.
Don't give up! There is a lot of new technology and research that continues to develop daily.
There is hope.
Dawn

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Replies to "This is a common response by over 90% of specialists. Sadly it's Not true! As long..."

What great news, Dawn! Being proactive certainly was beneficial.

They only removed the right adrenal gland, correct? They have me on Spironalactone for the Hyperaldosteronism. With 1 bp pill twice a day and the other pill, I'm feeling much better. But I am going to continue to advocate to have it removed. I'm so tired of having to deal with this high blood pressure and the shakiness when my adrenal gland decides to pump out too many hormones into my system. I had several trips to the ER as well with blood pressure 200/100 and up. Please keep us posted on your progress!