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Lymphovascular Invasion Present

Breast Cancer | Last Active: May 19, 2023 | Replies (24)

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@annkitz

Update: I am the one who started this post about LVI. Neither my surgeon nor my oncologist mentioned LVI when we met to set up a plan. I did ask about it and was told that it is a negative but it is not included in staging. I chose to have a double mastectomy in October, 2022 and am now taking Letrozole. I did not have radiation. I feel great at this point and am just trying to live my best life and leave the rest up to God. God bless each one of you!

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Replies to "Update: I am the one who started this post about LVI. Neither my surgeon nor my..."

@annkitz ditto- docs didn't mention it. I asked the surgeon via portal if it was focal or extensive and it was focal, so that was a little reassuring. One oncologist explained to me that it isn't a matter of it creeping up close to nodes- makes no difference where it is- instead it is that the cells are showing the capacity to move and settle, so that if those types of cells got through to the lymph or blood vessels, there is more risk than with (cancer) cells that do not show that tendency. That was supported by my highish ki67% and grade 3 at some hospitals (grade 2 at others). But... low Oncotype!

I was told one out of 5 radiologists would recommend radiation. The tumor board at Dana Farber recommended only meds. I had double mastectomy and did 5 years letrozole. Would have done 7 years but Breast Cancer Index test told me no benefit. My risk is now anywhere from 65.7% to 9% depending on the test. Oh-and the online risk assessments like cancermath don't include LVI either.

I am more than 8 years out. I think I am still more nervous- on the back burner mostly- than if I had had grade 1, low ki67% and no LVI! I guess it's the 95% ER 80% PR that saved me from chemo.