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DADS-M Neuropathy with Anti-Mag Antibodies...anybody else?

Neuropathy | Last Active: Oct 19 6:04am | Replies (35)
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@as143

Thanks for your response. MGUS was diagnosed and like you just needs to be monitored at this point. I was then diagnosed with DADS but didn’t realize at the time there are different versions of that. Have just completed my 2nd month of IVIG therapy with no noticeable change as yet. Will have to get more info about my DADS when I see neurologist next month. Suspect this all began with Pf Covid v’s but no confirmation of that as yet. I can say that before v’s I was perfectly healthy, active with no health issues. Now my life is upside down!
Wishing you all the best on this crazy journey!

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Replies to "Thanks for your response. MGUS was diagnosed and like you just needs to be monitored at..."
kcory | @kcory | Jul 31, 2023

I have DADS with Anti-Mag -- and I firmly believe it from my Pf Covid Vac's... but no doctor will go against the establishment and support me in this.

I am starting Rituximab once the insurance hoops are jumped through. They denied it the first time, and required IVIG, which made me worse and ended up in the hospital with a chemical based meningitis.

I wish you the best on your journey!

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